Monday, July 21, 2008
Mara and Her Kidney's
On our way back home from Arkansas...June 25th Mara started running a fever and was complaining of her belly hurting. By the time we got home, she had spiked a high fever!!! By the time we got to see the doctor, her fever had hit 105.8. I knew what the doctor was going to say once we did a culture...Poly nephritis...kidney infection. This is the third one that she has had since Sept 2007 when she was diagnosed with stage 4 kidney reflux on the right and stage 3 on the left as well as a double collection system on the right. Layman terms she has two smaller kidneys and tubes on the right side that make up the size of one kidney and her urine goes back up to her kidneys from the bladder. She has been on bactrium (antibiotic) daily since then to keep from having the infections however she has had break thrus (infections). With the infections, she has had to have shots of rocephin, and another antibiotic after that. This time she had shots of rocephin, then augmenton, ceftin, and macrodantin. We went to the doctor on Friday, July 11, to get a clean culture and they told us she was clear. Sunday night she started running another fever only 101.0 but after talking to the doctor she called us in another round of ceftin. On Tuesday, the Dr. called to say the their was bacteria in the culture after 48 hours. We went back in on Wednesday to do another culture that also showed clear and finally after 48 hours her culture she was finally clear of infection. Our ped urologist will be doing a kidney scan, another ultrasound, and another VCUG in the next month. We should be able to know a what level her kidneys are functioning and how much scaring has happened as well as what we will be doing about the surgery that she will need to remove one of the kidneys. They have told us that anytime her fever is over 103 it can cause scaring and damage to the kidneys. We have also been told even on the bacterium, which is suppose to stop her from having infections, that she could keep having these infections, that a simple change in water, detergents, or toilet paper can cause them among other changes. That there is no way to completely stop them just try to keep the number of them down. I know that I have been rambling but several have asked how she is doing so I thought I would give an update. I will post more once we know that the testing shows.
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3 comments:
Jana--I'm so sorry to read all of that. How frustrating. We will be praying for you!!
Miss you!
Julie Kadamus
Oh my goodness! I hope things are better now! Sounds like you guys have been traveling a lot too and have had a fun summer. We will have to hook up again once school starts!!
hey girl! i love all the new pics. those kiddos grow fast! we are praying for mara...and her kidneys. hope we get to see you soon. we need to figure out a time to come to Atlanta. we miss you!
Cindy
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