Medical Updates on Jema Mara and Jama

JEMA
They are starting to take her off one of her meds, if she does good we will be taking her off one more. That will just leave her taking one last med daily. She has been on three meds daily for kidney/bladder issues since she was four. We are sooooo excited.

MARA
She will have her testing done October 3rd. However, the test to see what her kidney's are functioning at my not be done....apparently the hospital is out of the contrast they need to run the test and there is only one company who makes it and they are out. We will not know about that test being run until the Friday before.

JAMA
She is growing just not very fast. When we were at the GI Dr. he was watching how much she ate and how well she chewed solid food to only be 10 months...she even said MO (more) and JU (juice) for him. He was impressed at her developmental level and eating skills. She was very interactive with him and he loved it...they played for a little while. However...Dr. Patel was concerned how with much she ate and how little she is growing. If only I had that problem. He sent us down to have blood work last Friday and then we had to collect four stool samples and freeze them this week to start off with. They called this Friday to let us know that she doesn't have CF, Siliacs, thyroid problem, or any thing else that they were looking for that could cause her SLLLOOOOOWWWWW growth. They did find that her iron level was low but that was not a surprise to us because she does not take the extra iron vitamins that most babies take because iron causes constipation...something that she alrady takes meds for...well we are now giving her extra iron and extra meds for constipation. We are still waiting on the stool sample results...it could be a couple of weeks before we get them back. Once we get all the results back, we will meet with her Dr. again and discuss our next line of testing if necessary. We also discussed that it could just be malabsorption which is what Mara was diagnosed with for her FTT. She is now....drum roll please.....15.6 pounds. I hope that we can turn her car seat around by the time she is 2.